Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 5, 2006 19:09:05 GMT
Hi folks,
Dr. (Arthur?) Weinstein is a rheumatologist at NYMC/WCMC in Valhalla, NY. I saw him in 1992. He's another asshole.
He did nothing but insult me for the entire duration of my visit (and well after that too). He kept insisting 3 things:
1) That I did not currently have LD at that time.
2) That I never had LD in my life.
3) That my symptoms were all psychological (I was imagining them). He even convinced my family of this.
When I saw Dr. Weinstein, I had never had a Lyme Western Blot test done, so he did one. When he saw the results, he must have shit his pants. It came back positive (twice - he repeated it to be sure). He had to eat his words. Then, he changed his story. At that point, he said that I had "previous Lyme infection" (a. k. a. "Post Lyme Syndrome" - more on that below). But he insisted (wrongly, in my mind) that I did NOT have current, active Lyme infection. Of course, I STRONGLY disagree with him.
I think Dr. Weinstein is a disgrace to the medical profession.
Augie
(continued in next post...)
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 5, 2006 19:24:05 GMT
Hi folks,
When I saw Dr. Weinstein, he had an assistant named Dr. (Debra?) Karling. I think she was an intern or a resident in training at NYMC/WCMC.
After my office visit with Dr. Weinstein, I spoke to Dr. Karling on the phone. She was a nasty f**king bitch on the phone, and she did nothing but hurl insults at me during our entire conversation. She was a stuck-up, conceited, snot-nosed bitch. She was another dumb asshole.
At that time, I was applying for disability benefits from the government (more on that below). She asked me why I was doing that. I explained to her that I had no health insurance. She replied to me (in a VERY NASTY tone of voice), "Well, you don't need health insurance". It wasn't even so much what she said, but the way she said it (like a real f**king bitch).
There I was, sick as hell. My medical bills were running into tens of thousands and even hundreds of thousands of dollars a year. My parents would have lost their house trying to pay my medical bills. And this f**king goddam cock-sucking mother f**king c*nt whore bitch is telling me (in a VERY NASTY tone of voice) that I "don't need health insurance".
And she wanted to be a doctor???!!!!!!!!!!
I sincerely hope that she changed her mind and did NOT become a doctor.
I think that she also is a disgrace to the medical profession.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 5, 2006 19:43:20 GMT
Hi folks,
I saw Dr. Patricia Coyle (a neurologist at SUNY Stony Brook) in 1991. She was "okay" (not bad, not good). She was the least hard-headed of the doctors at SUNY SB. I think she was more interested in conducting her own research than in treating LD patients. She kept insisting that I have multiple spinal taps done. I refused. The first time she did it, I got violently sick about 36 hours later, and I had to be hospitalized.
The head doctor there at SUNY SB is Dr. Dattwyler. He's another asshole who does nothing but insult LD patients. He's a real "dick". In fact, I call him "Dr. Dickwyler".
Dr. Dattwyler is CONSTANTLY attacking and insulting Dr. Burrascano. He has written several articles to the media about LD. He doesn't know what the f**k he's talking about. He doesn't know his ass from a hole in the wall. He frequently acts as a paid consultant for health insurance companies. He goes to court on their behalf and denies necessary and essential health care to cLD patients. Then, there was the "patent incident" (a very long story). He routinely puts his own financial gains ahead of the best interests of cLD patients. He's a real f**king bastard.
If I remember correctly, I think Richard Lynch had some problems with Dr. Dattwyler too. He's a disgrace to the medical profession.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 5, 2006 19:51:40 GMT
Hi folks,
The following is a list of great/good doctors for LD:
Dr. Joe Burrascano (East Hampton, NY) Dr. Leigner (Westchester County, NY) Dr. DeSilva (Edison, NJ) Dr. Fein (NJ) Dr. (Brian?) Fallon (NY) Dr. Ram S. Nair (Staten Island, NY)
Dr. Fallon knows more about the psychiatric aspects of cLD than just about any other person on the face of the Earth.
If anyone needs to see a "Lyme-literate doctor", just contact the LDF (in CT), and they will refer you to one for a small donation.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 21, 2006 18:46:20 GMT
Hi folks,
In this post, I want to discuss the American Lyme Disease Foundation (ALDF). It is a "bullshit" organization that is headed by VERY ignorant doctors. They are scumbags. They attack and harass the "good doctors". They are constantly spreading lies and false propaganda about cLD. One of the "big shots" at ALDF is Dr. Wormser (or something like that). He's a real asshole.
They STRONGLY believe in "Post Lyme Syndrome" (PLS). PLS is a fictitious, fantasy illness that doesn't exist. There is no such thing. It was invented by a bunch of sick bastard doctors who have nothing else better to do but torture and torment the f**king mother f**king shit out of cLD patients. If any doctor out there believes in PLS, then I have a bridge to sell you. Do you believe in the Easter Bunny and Santa Clause too?
PLS makes no sense. Why would the human body continue fighting an organism that is no longer there (which is the basic premise of PLS)? Yes, it is true that cLD is basically an auto-immune disorder. But something must be driving that auto-immune response. I feel it is chronic, persistant infection with the Lyme organism. The basic, fumdamental principle of PLS assumes that the human body continues fighting the Lyme organism years and years after it has been erradicated from the human body. It's a big load of bullshit. PLS just doesn't make any sense. Yet, 98% of the doctors in America believe in PLS. And only 2% believe in the "chronic, persistant infection theory" (which is what Dr. Nair, Dr. Burrascano, and myself believe in).
I feel that doctors who are affiliated with ALDF are a disgrace to the medical profession.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 21, 2006 19:09:56 GMT
Hi folks,
In this post, I want to discuss the mainstream medical organizations and how they have miserably failed cLD patients.
As far as the diagnosis and treatment of cLD are concerned, the medical community is split into 2 warring factions. These are the rival groups:
Group #1 : American Medical Association (AMA) Center for Disease Control (CDC) Infectious Disease Society of America (IDSA) American Lyme Disease Foundation (ALDF) New England Journal of Medicine (NEJM) Mayo Clinic the entire American mainstream medical community 98% of the doctors in America health insurance companies (for cost reasons)
Group#2 : Lyme Disease Foundation (LDF) Lyme Disease Association (LDA) myself Lyme Disease patiients 2% of the doctors in America
These 2 groups are literally at war with each other, and they have been so for at least 20 years.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 21, 2006 19:33:20 GMT
Hi folks, The AMA is a "bullshit organization" that is headed by a bunch of idiots who don't know their ass from a hole in the wall. Its board of directors suffers from gross negligence and incompetence. The CDC is a "retard organization". Several years ago, they tried to "fix" the Lyme Western Blot test. Not only did they not fix it, but thet f**ked it all up and blew it out of thier assholes. For one thing, they used the wrong strain of the Lyme organism. They also declared protein bands that don't make any sense. They also deleted "proper" protein bands. This is just one example of their stupidity and retardedness. Even further evidence of the CDC's retardedness is an incident that occurred a few years ago. The current ELISA test for LD is terrible, with many false positives and false negatives. These 2 scientists developed a new and better test for LD. A CDC panel had the job of either approving or rejecting this new test. They rejected it. No one could figure out why. Then, someone discovered the reason. At least one panel member (and possibly more) from the CDC's Fort Collins, CO division held a partial patent on the current LD test. This person/people got a payment every time someone performed the current LD test. If a new and better test for LD were approved, this person/people would no longer receive that payment. So, this person/people had a vested financial interest in seeing to it that the current LD test remained the approved test and that a new and better test did NOT replace it. Obviously, there was a SERIOUS conflict of interests here. This person/people sat on that CDC panel that made that decision to reject that new and better test for LD. I feel that someone at the CDC should have been forced to "walk the plank" for this incident. The IDSA is another "bullshit organization". A few years ago, the IDSA was called upon to formulate treatment protocals for cLD. After much arguing and fighting, that process was taken out of the hands of ID doctors. They found these 2 VERY ignorant rheumatologists, and they placed that process in their hands. These 2 rheumatologists were famous for their retarded and ignorant views on LD for years. Believe it or not, the treatment protocals for America's main ID medical society were formulated by 2 VERY ignorant rheumatologists who had a reputation (for years) for having ingnorant views on LD. The IDSA's protocals were then adopted by just about every doctor in America. It was a disaster. Augie (continued in next post...)
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 18:20:27 GMT
Hi folks, The NEJM and JAMA are 2 "bullshit" publications. They are perfect examples of "yellow journalism". They are good for letting your dog pee on them. Within the past few years, there were 2 major studies performed about LD. They were both "bullshit", and they were both SERIOUSLY flawed. Neither study was conducted following the "proper scientific method". I should know because I come from a science and engineering background. In one study, they failed to properly define the term "Long-term treatment" at the beginning of the study. Of course, the whole entire study was "garbage" because it was based upon a false initial assumption ("garbage in, garbage out"). The whole study "blew up". In the other study, they deliberately (and conveniently) excluded certain patients - particularly cLD patients with chronic neurological symptoms. By the way, these patients are the very patients who have the most severe and most disabling symptoms, and they are most likely to be sick for the longest amount of time. How convenient!!!!! They did this so that all of their charts and graphs would look nice and neat at the end. They went into this study with a pre-formed notion of what they wanted the results, charts, and graphs to look like. Then, they deliberately "rigged" the study so that they would get those results at the end. At the end of this study, they (WRONGLY) concluded that LD is a benign illness that is easily cured with short-term antibiotic therapy. Of course, health insurance companies use this as ammunition agasinst cLD patients who want/require more aggressive therapy. Some scientists were SERIOUSLY alarmed over this study - to the point that they literally dropped out of it. There were some scientists who were initially affiliated with this study. When they saw what a disaster and farce it was, they dropped out of it. They didn't want their names associated with a seriously flawed (and "bullshit") study. The NEJM/JAMA published both of these studies as if they were legitimate studies. They gave creedance to 2 seriously flawed (and "bullshit") studies. I think that NEJM and JAMA are "rags" to let your dog pee on. By the way, I wrote to numerous politicians about issues I raised in these last 2 posts. They didn't do a goddam thing about it. Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 18:40:33 GMT
Hi folks,
These "mainstream" American doctors (and especially doctors affiliated with ALDF) could learn many things from LD patients - if they would only listen and stop being so ignorant. I'll never forget a quote from Dr. Leigner about 10 years ago in the media. He said this (in reference to doctors ignorant towards LD): "They are so blinded by what they 'know' that they can't even see the evidence that is piling up right in front of their faces." He is absolutely right, and I agree with him 110%.
I didn't read about LD in some textbook. I have been living thru it every single day for 16 f**king years. Dr. Burrascano was seriously ill with LD for many years also. I guess that's why he feels the way he does about it, and that's probably why he treats it the way he does (VERY aggressively). He lived thru it for several years, so he knows what the suffering of a LD patient is like. I'm sure that influenced his reasoning.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 19:04:32 GMT
Hi folks,
In this post, I want to discuss the medications I took to treat my LD. I took massive doses (elephant doses) of just about every antibiotic known to mankind. The following is a list of antibiotics I took to treat my LD:
IV Rocephin IV Claforan IM Bicillin (ass shots) amoxicillin Suprax Ceftin Doxycycline Erethromycin Biaxin Zithromax
The following is a list of non-antibiotic drugs I took to treat my LD:
Plaquinil (an anti-malaria drug to kill the Lyme organism in its animal state) Valtrex (to kill the theoretical viral component of LD) Flagyl (to kill the Lyme organisms in cyst form) numerous NSAIDs mild steriods (to control the Herxheimer reactions)
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 19:16:37 GMT
Hi folks, In my opinion, Suprax is the best oral antibiotic for LD. That is the drug I took the most of. I feel this way for 3 reasons: 1) I had the best results with Suprax. Suprax gave me the best improvement in my symptoms. 2) Of all the oral antibiotics I took, Suprax gave me the most SEVERE Herxheimer reactions. This is a good sign. It means the antibiotic is working. 3) Suprax gave me virtually no side effects. I was VERY comfortable taking Suprax. I took more Suprax than any other drug. I was on Suprax for about 4-5 years (approximately 1,650 days). I took massive doses (elephant doses) of it. I took either 1,600 mg a day, or 800 mg a day with Probenicid. Of course, this was courtesy of Dr. Burrascano and Dr. Nair (thru Dr. Ramanathan). I think I have taken more Suprax than any other person in the history of the human race. I'm a walking experiment ("guinea pig"). I must hold the record. Maybe I should contact Guiness . If the government (FDA) wants to know if Suprax is a safe drug, all they have to do is contact me. I'll vouch for it. My body is living proof that Suprax, even taken in long-term high doses, is safe. Augie (continued in next post...)
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 19:24:52 GMT
Hi folks,
I was on IM Bicillin (1.2 million units a week?) for 18 months. For most illnesses, Bicillin is given every other week. But, for LD, it is given every week. It is administered in the ass cheeks. My ass was killing me for 18 months. I couldn't sit down for 18 months.
On 3 different occasions, I was treated with short-term courses of IV Rocephin or IV Claforan. The reason they were short-term is because of the Herxheimer reactions. I had such SEVERE Herxheimer reactions to these drugs that my doctors were afraid it was going to cause organ damage/failure. So, they stopped it.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 19:37:33 GMT
Hi folks,
After Suprax, the drug I took the most of is Doxycycline. I was on Doxy for about 3-4 years (approximately 1,300 days). I took 200-300 mg a day. Doxy is a good drug for LD, but it has its limitations. The biggest problem with Doxy is that it is "bacteriostatic". This means that it doesn't actually kill the Lyme organism. It only prevents it from reproducing. This is a real problem with LD because the Lyme organism has such a long re-generation cycle. In a dormant phase, the Lyme organism can take up to 10-20 years to reproduce. This means that, in theory, you would have to stay on Doxy for 20 years. That's not being realistic. The biggest side effect to Doxy is that you can't have ANY exposure to sunlight (not more than 5-10 minutes a day). Imagine doing that for 20 years.
By the way, antibiotics that are "bacteriocidal" actually kill bacteria. Drugs in the penicillin/cephalosporin family and the erethromycin family have this trait.
Drugs in the tetracycline family are "bacteriostatic". They don't kill bacteria. They only prevent it from reproducing. It's like putting the bacteria on birth control. It f**ks up the DNA of the bacteria when it tries to reproduce.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 19:52:17 GMT
Hi folks,
Whenever a LD patient takes antibiotics (especially drugs in the penicillin/cephalosporin family), they experience a Herxheimer reaction. What happens is that the Lyme organisms in the human body sense the presence of the antibiotics. They secrete proteins that are toxic to the human body. They try to poison you. Your immune system responds by kicking into "double-overdrive". You get very, very, violently sick.
Whenever I experience a Herxheimer reaction, 3 things happen to me:
1) The intensity and magnitude of my Lyme symptoms are magnified by about 10-100 fold.
2) I get SEVERE diarhea, especially on the IV antibiotics. You are basically married to the toilet bowl.
3) I am covered in literally hundreds of hives on my skin.
Herxheimer reactions are like going thru f**king hell. You feel like death itself. They can last anywhere from a few weeks to several months. The first time I was treated with long-term antibiotics was 1992-1993. Dr. Burrascano gave me Suprax. That (the first one) was the worst Herxheimer reaction I ever had. It lasted 8 months, from Februrary 1993 to October 1993. I often refer to 1993 as my "Herxheimer year". That was my worst year, in terms of the severity of my symptoms.
Augie
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Augie
The Fart Meister
Posts: 491
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Post by Augie on Jul 24, 2006 20:04:03 GMT
Hi folks,
Suprax is a great drug for LD. Unfortunately, it was discontinued a few years ago. Its manufacturer stopped making it. It had a very limited market. Just about the only people taking Suprax were LD patients and HIV/AIDS patients. The reason for that is the cost. Suprax is a VERY powerful antibiotic. For 98% of all bacterial infections, it is entirely unnecessary and a waste of money. LD and HIV/AIDS are SERIOUS infections, so they require powerful drugs.
In 1991 (15 years ago), Suprax cost $15 a pill. The maximum dose is 4 a day, so it cost $60 a day. That was 15 years ago. God only knows what it would cost today. I would imagine that it would be over $100 a day, and that's a conservative estimate. No one ever made a generic version of Suprax. I don't know why.
In the absense of Suprax, the best oral drugs for LD are probably Ceftin and Doxycycline.
Augie
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